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PlexusCalls: Crowd-funding Research on Rare Diseases
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Innovative Scientist Fights Rare Diseases

When: Friday, February 28, 2014
1-2pm ET

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Friday, February 28, 2014 - 1-2pm ET
Innovative Scientist Empowers Patients Battling Rare Diseases
Guests: Jimmy Lin and Trish Silber

MP3 File


Some 7,000 rare genetic diseases afflict about 30 million Americans and 250 million people world wide. Dr. Jimmy Lin, physician, computational geneticist, and oncology researcher, thought there had to be a way to help families struggling to find treatments for children with unusual and poorly understood conditions. Many families are finding a way through Dr. Lin's creative uses of high technology, crowd-funding, and help from friends and colleagues in science, medicine and academia.

Jimmy Lin, MD, PhD, MHS, is a 2012 TED Fellow and Founder & President of Rare Genomics Institute, the world's first platform to enable communities to leverage cutting-edge biotechnology to advance understanding of rare diseases. Partnering with top medical institutions, such as Harvard, Yale, Johns Hopkins, and Stanford, RGI helps custom design personalized research projects for diseases so rare that no organization exists to help. Previously, Dr. Lin was a medical school faculty member at the Washington University in St. Louis and, while at Johns Hopkins, led the computational analysis of the first ever exome sequencing studies for any human disease. He has numerous publications in Science, Nature Genetics, Nature Biotechnology, and Cell and has been featured in Forbes, Bloomberg Businessweek, Wall Street Journal, Washington Post, BBC, TIME, CNN, and the Huffington Post.

Trish Silber is president of Aliniad Consulting Partners, Inc., a Washington D.C.-based consulting firm focused on strategy, leadership, and organizational change. Her expertise is in executive coaching and in leading system-wide strategy and change efforts from a complexity perspective. She has over 25 years of experience consulting to businesses, government and non-profits. Trish earned an MBA from Santa Clara University and a BA in behavioral psychology from Connecticut College. She served on the faculty of the George Washington University graduate program on leadership coaching from 2001 to 2006. Trish is a former board member for Plexus Institute and currently serves on the board of the National Environmental Education Foundation and on the Advisory Council of The Leadership Sanctuary. She coaches TED fellows through SupporTED and participated in the 2012 and 2013 SupporTED Collaboratoria.

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